How is information collected?

Public Health Scotland (PHS) routinely receives information (external website) from NHS Scotland Health Boards and National Records of Scotland (NRS) on:

  • hospital admissions for pregnant women and babies
  • terminations of pregnancy
  • live births, stillbirths and infant deaths (from NRS)

This information is examined to identify babies who may have a congenital condition.

PHS specialist registration staff then review the records for these babies and check them against the mother’s and baby’s clinical records held by the hospitals that are caring for them.

If the baby is confirmed as having a congenital condition, a record for them will be added to the CARDRISS register.

Babies are included in the register if their condition is identified before their first birthday.

Babies with a condition are also included if the pregnancy ends in:

  • a miscarriage or stillbirth (from 20 weeks of pregnancy onwards)
  • a termination of pregnancy (at any stage of pregnancy)
Last updated: 06 October 2022